IHDL: Invloed van
Huidaandoeningen op het
Dagelijks
Leven/ISDL: Impact of
chronic Skin diseases
on Health and Daily Life
The IHDL/ISDL is a
multidimensional
instrument for measuring the
health status of patients with
skin
diseases. The IHDL/ISDL can be
completed without professional
assistance. It
takes about 20 minutes to
complete. Items of the inventory
are scored on a
4-point or 5-point Likert scale
and a VAS scale for physical
symptoms.
The specific and skin
related part assesses dimensions
of physical functioning,
more specifically skin status,
physical symptoms of itch, pain
and
fatigue and scratching responses
as well as disease-specific
stressors
of stigmatization.
The generic part gauges
dimensions of
psychologically functioning,
disease-related impact scales,
illness
cognitions and social support by
means of existing scales validated
for
other chronic diseases.
The IHDL/ISDL assesses the
psychological dimension as
positive and negative
affect through three already
existing scales, namely anxiety
(10 items)
, depressed mood (6 items) and
cheerful mood (6 items) of which
the
reliability and validity have been
studied in the Dutch population
(Van
der Ploeg et al., 1980; Zwart et
al. 1982; Huiskes et al, 1990).
Illness cognitions are measured
with the ICQ (Evers et al., 2003)
.
Social functioning is measured
through a Dutch validated social
support
scale (ISB: Van Dam Baggen &
Kraaimaat, 1992). Impact is
measured
by the impact scale of the IRGL
(Huiskes et al., 1990) and a newly
developed stigmatization scale.
Reliability and validity of the
questionnaire was studied in
patients with psoriasis and atopic
dermatitis. The scales of the
questionnaire showed high internal
reliability and test-retest
reliability and satisfying
convergent
validity in both patient groups.
Sensitivity to change was
demonstrated
for both dermatological and
cognitive-behavioral itching
treatment. The
use of the IHDL/ISDL is free for
health professionals and
researchers. The
questionnaire is available in a
Dutch/IHDL [artivle
in .pdf format] and
English/ISDL [article
in .pdf format]
version.
Publications
Evers, A.W.M., Duller, P., van de
Kerkhof,
P.C.M., van der Valk, P.G.M.,
Gerritsen, M.J., Otero, M.E.,
Verhoeven,
E.W.M. & Kraaimaat, F.W.,
(2007). Invloed van
huidaandoeningen voor
het dagelijks leven (IHDL). Een
ziektespecifiek en generiek
meetinstrument voor chronische
huidaandoeningen (impact of
chronic skin
diseases on daily life: A
disease-specific and generic
assessment). Psychologie
& Gezondheid, 35,
40-49. [article
in .pdf format]
Evers, A.W.M., Duller, P., van de
Kerkhof,
P.C.M., van der Valk, P.G.M.,
Gerritsen, M.J., Otero, M.E.,
Verhoeven,
E.W.M. & Kraaimaat, F.W
(2008). The impact of chronic skin
disease on daily life (ISDL): a
generic and dermatology-specific
health instrument. British
Journal of Dermatology, 158,
101-108.[article
in .pdf format]
Publications with the IHDL/ISDL
as a measurement
of health status in patients with
skin diseases
Lu, Y, Valk, P.G.M. van der &
Evers,
A.W.M. (2003). Helplessness as
predictor of perceived
stigmatization in
patients with psoriasis and atopic
dermatitis. Dermatology and
Psychosomatics, 4, 146-150.
Evers, A.W.M., Lu, Y., Duller, P.
, Valk van der. P.G.M. Kraaimaat,
F.W., Kerkhof van de, P.G.M.
(2005). Common burden of chronic
skin
diseases? Contributors to
psychological distress in adults
with
psoriasis and atopic dermatitis. British
Journal of Dermatology,
152, 1275-1281.
Verhoeven, E.M., Kraaimaat, F.W.,
Duller, P., van de Kerkhof,
P.C.M.,
Evers, A.W.M. (2006). Cognitive,
behavioral and physiological
reactivity of chronic itching:
Analogues to chronic pain. International
Journal
of Behavioral Medicine, 13,
3, 237-243
Evers, A.W.M., Kleinpenning,
M.M., Smits, T., Boezeman, J.,
Kerkhof, P.C.M. van de, Kraaimaat,
F.W. & Gerritsen, M.J.P.
(2009). Itch and scratching as
predictors of time to clearance of
psoriasis with narrow-band
ultraviolet B therapy. British
Journal of Dermatology, 161,
542-546.
Verhoeven, E.W.M., Kraaimaat,
F.W., Jong, E.M.G.J. de,
Schalkwijk, J., Kerkhof, P.C.M.
van de & Evers, A.W.M. (2009).
Effect of daily stressors on
psoriasis: a prospective study. Journal
of Investigative Dermatology,
129, 2075-2077.
Verhoeven, E.W.M., Kraaimaat,
F.W., Jong, E.M.G.J. de,
Schalkwijk, J., Kerkhof, P.C.M.
van de & Evers, A.W.M. (2009).
Individual differences in the
effect of daily stressors on
psoriasis: a prospective study. British
Journal of Dermatology, 161,
295-299.
Evers, A.W.M., Kleinpenning,
M.M., Smits, T., Boezeman, J.,
Kerkhof, P.C.M. van de, Kraaimaat,
F.W. & Gerritsen, M.J.P.
(2010). Treatment nonadherence and
long-trm effects of narrowband
UV-B therapy in patients with
psoriasis. Archives of
Dermatology, 16, 198-199.
Laarhoven, A.I.M., Kraaimaat,
F.W., Wilder-Smith, O.H., Kerkhof
, P.C.M. van de & Evers,
A.W.M. (2010). Heterotopic
pruritic conditioning and itch:
Anaogous to DNIC in pain. Pain,
149, 332-337.